He is doing great, (medically). He gets upset a lot, and it's heart breaking. The fentynal works well though. He got his breathing tube taken out last night around 10pm. His saturations are between 88-96%. He looks good, eyes a little puffy. He is getting is catheter taken out from his private part today, yoo hoo! The doctors just made their rounds, and siad he is doing excellent! Another doctor said he is the biggest single ventricle patient. He will prob. get 2 chest tubes out tomorrow, and his R.A. line out Wed., and then his last chest tube after that. No word about moving to a step down yet. Vitals are great, and he had dome milk!
That's about it for now. I just want him to be comfortable. Watching him suffer is heart breaking.